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Create Ability: A Conference on Creativity and Disability
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"Interview with Asphyxia"
Asphyxia is an artist, author, activist and performer who has founded Amplio, a music app for Deaf and hard of hearing people. She also provides free online Auslan lessons and online art courses. Interview Summary Asphyxia is a Deaf artist whose journey into the arts started with a deep love for ballet, but after facing discrimination due to her Deafness, she pivoted to a successful career in circus performance and later puppetry, which embraced her Deafness and signing skills. Her work in performance art led her to write and illustrate the Awards-winning art-journal book, Future Girl, which explores Deaf identity and environmental issues. She has now moved into music, creating an app that makes music accessible and writing music designed with Deaf and hard of hearing audiences in mind. Although not sure about the major milestones in disability arts history in Australia, she considers her art to be both political and personal, often tackling issues related to her identity as a Deaf person and the aesthetics of disability equipment. While Asphyxia identifies as a Deaf artist, above all, she sees herself as an artist whose work appeals to the mainstream while celebrating Deafness and diversity. -
"Kath Duncan, Gerard Goggin (2002). 'Something in Your Belly': Fantasy, Disability and Desire in My One Legged Dream Lover. Disability Studies Quarterly 22 (4), pp: 127-144." In this article we explore fantasy, disability and desire in the groundbreaking 1998 Australian TV documentary My One-Legged Dream Lover. Based upon self-reflexive documentary conventions, the video uncovers journalist-cum-freak raconteur Kath Duncan's explorations into the world of amputee fetish. Duncan is a double congenital amputee. She says," I've tried most things men, women, sex toys, unusual locations, dominance and submission games but I wanted to know what it was like to be desired because of my impairments." Gerard Goggin is a temporarily able-bodied (or TAB) academic with his own history of queer desire and a personal investment in exploring issues of difference. Duncan's and Goggin's collaboration includes accessing each other's edgier fantasies, aiming to give voice to some of the negotiations, anxieties, pleasures, and risks we have taken, speaking across the chasm of our personal histories, different genders and respective bodies.
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"Australia Council for the Arts (2018) Creating Pathways: Insights on support for artists with disability. 19 September 2018" Reads, in part "This report brings together findings and insights from a range of research undertaken in 2017–18 to inform the Council’s approach to future support for artists with disability."
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"Accessible Arts - International Day of People With Disability, captured 2022"
Accessible Arts - International Day of People With Disability - reads, in part "The International Day of People with Disability (IDPwD) on December 3 provides a valuable opportunity every year to acknowledge, honour and celebrate people with disability and the vital contributions they make to arts and culture here in Australia and throughout the world." -
"Australia Council - Annual Report 2002-03"
Australia Council Annual Report 2001-2002 - discusses letter from chair of council, corporate overview, year in review, financial statements, analysis of funding and grants for projects, initiatives, new work, programs, presentation and promotions including funding for implementing the Commonwealth Disability Strategy by evaluating current and changing needs of people with disabilities in the arts sector and reflecting this in funding and policies, arts marketing and audience development and triennial grants to disability arts organisations in NSW, South Australia and Victoria as well as a Fellowship by the Community Cultural Development Board (CCDB) to Tony Doyle to develop models for disability-led community building and on-the-job training for disability support workers and performance of “Soft” by Back to Back theatre at the Melbourne Festival and on tour to Switzerland and Germany. -
"The Arts and Disability"
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"Australia Council: Australian Arts Snapshots - Disability & the Arts (2002)" Reads, in part "Australians who have a disability are recognised as being creators of innovative, thought provoking, high quality, and often very irreverent artistic product. They are active across all artforms in mainstream and community arts contexts"
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"Interview with CB Mako"
CB Mako is a non-fiction, fiction and fanfiction writer and disability advocate. Interview Summary cubbie||CB Mako is a creative practitioner and disability advocate who emphasizes the importance of accessibility in the arts, advocating for digital inclusivity and the elimination of ableist practices. cubbie pushes for systemic change so that future generations, like their disabled child, don't have to fight for access to art and literature. Success for cubbie is defined by the progress made when institutions include disability in their funding, competitions, and programming. Using the pen name CB Mako and going by pronouns cubbie/they/them, urges non-disabled artists, particularly from communities of colour, to proactively incorporate access in their work. -
“Australia Council - People with a disability - artists 2003”
Sourced from 'Australia Council- Don’t give up your day job: An Economic Study of Professional Artists in Australia' (Throsby and Hollister 2003) based on 2002 Survey - The website reads “The 2002 Australia Council artists survey, Don't give up your day job collected information relating to practising professional artists in Australia…..According to Don't give up your day job, about 10 per cent of practising professional artists live with a disability.” -
”Hadley, Bree, Batch, Morgan, & Whelan, Michael (2021) The entitled ally: Authorship, consultation, and the 'right' to stage autistic people's stories. Disability and Society, 36(9), pp. 1489-1509.” "Theatre has a long tradition of presenting disabled characters as plot devices to tell someone else’s story. A recent production, All in a Row, resulted in heated debate around this issue. This article examines not the play itself, but the conflict between those who objected to the play’s representation of autism, and its creators, who defended their choices by citing their disability-adjacent identities and processes of consultation. For critics, the fact that the creators did not take the community’s concerns seriously was a source of trauma. This article uses this conflict to draw out lessons about how we might better negotiate the right to tell disability stories and strengthen frameworks to support that negotiation. We propose a decision tree diagram to assist artists in understanding the meaning, role, and most importantly the potential consequences of consultation – up to and including a community saying ‘no’ to an artist’s planned representation."
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"Interview with Matthew Shilcock"
Matthew Shilcock is a stage and film performer, dancer, director, choreographer, producer, project planner, manager, consultant and disability advocate. Interview Summary Matthew Shilcock, a contemporary dancer, lives with osteogenesis imperfecta, a condition that led him to discover dance as an affordable alternative to physiotherapy. His 12-year dance career has been shaped by working with both disabled and non-disabled artists, including elite companies and individual dancers, where he found a passion for the unique problem-solving and rewarding experiences that come with working with disabled dancers. As he transitions from performer to dance maker, Matthew's motivation has shifted from personal excitement and self-discovery to a focus on the next generation, aiming to pass on his unique experiences and methodologies. He acknowledges that while being on stage as a disabled artist can be inherently political, he values his authenticity and the impact of his work over the perceptions and labels placed upon disability in the arts. -
"Ruth Rentschler, Boram Lee, Ayse Collins, Jung Yoon (2023) ‘I am a professional dancer’: A case study of performing artists with disability. In Wyszomirski, M. J. & Chang, W. (Eds.), Building professionalism in the creative sector. Oxon: Routledge, 227-246" "The demand for professional recognition for artists with disability is growing. There is little research, however, on the ways in which disability arts are associated with professionalism. This study examines professionalization in disability arts by comparing it with the concept of professionalization in the arts generally. It identifies three components of professionalization in disability arts by means of a case study of an inclusive arts organization. This qualitative study entails 17 semi-structured interviews with artists, staff members, and other stakeholders both with and without disabilities."
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"Bree Hadley, Janice Rieger, Eddie Paterson (2024) Reinhabiting, Reimagining, and Recreating Ableist Spaces: Embodied Criticality In Art. In Ellis, Katie, Kent, Mike, & Cousins, Kim (Eds.) The Routledge International Handbook of Critical Disability Studies. Routledge, pp. 48-58." "In this chapter we bring critical disability studies into dialogue with disability artworks that resituate critiques of inaccessibility and exclusion as complicated encounters with space, lived experience and embodiment. Drawing on Irit Rogoff’s (2003, 2006) notions of embodied criticality, and the pioneering work of performance studies scholar Petra Kuppers (2003, 2014), we argue for an embodied, embedded and creative form of critical disability studies – enacted through art. We examine two recent performance and installation works in hotels: Welcome Inn (2019) by British artist Christopher Samuel, and Intimate Space (2017) by Australian performance company Restless Dance Theatre."
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- Weave Movement Theatre
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"Australia Council - Awards - National Arts and Disability Awards 2019-2021"
The website reads “The Australia Council National Arts and Disability Awards 2019-21 celebrate the work and achievements of both established and young artists, and the significant contribution of artists with disability to the vibrancy of Australian arts” -
"Interview with Tim McCallum"
Tim McCallum is a singer, performer and speaker and disability advocate. Interview Summary Tim McCallum is a performer who specializes in singing and acting, with singing being his foremost talent. Having sustained a spinal cord injury resulting in quadriplegia before beginning his studies at the Western Australian Academy of Performing Arts, Tim's childhood passion for the performing arts has continued to motivate his career. Through his experiences, both positive and negative, regarding inclusion and discrimination in the arts, Tim has become determined to challenge preconceived notions and make disability a visible and celebrated aspect of performance. He is a strong advocate for the representation of artists with disabilities in leadership roles within arts governance, stressing the importance of lived expertise over tokenism for lasting change in the industry. -
"Katie Ellis (2019) Disability and Digital Television Cultures Representation, Access, and Reception. London & New York: Routledge." Reads, in part "Disability and Digital Television Cultures offers an important addition to scholarly studies at the intersection of disability and media, examining disability in the context of digital television access, representation and reception."
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"Cultural Ministers Council (2009) National Arts & Disability Strategy." Reads, in part "On 9 October 2009, the Cultural Ministers Council agreed to the National Arts and Disability Strategy, which sets out a vision for improving access and participation in the artistic and cultural activities for people with disabilities. The Strategy provides a framework within which jurisdictions can assess and improve existing activities. It also identifies new priority projects that could be progressed as national initiatives or by individual jurisdictions."
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"Ted Evans, Michelle Bellon, Brian Matthews (2017). Leisure as a human right: An exploration of people with disabilities’ perceptions of leisure, arts and recreation participation through Australian community access services. Annals of Leisure Research, 20(3), 331–348." Reads, in part "Community Access Services (CAS) are defined as ‘Services designed to provide opportunities for people with disability to gain and use their abilities to enjoy their full potential for social independence’ [Australian Institute of Health and Welfare. 2015. Disability Services National Minimum Data Set Collection: Data Transmission and Technical Guide. Canberra: AIHW]. A notable absence of international research regarding leisure, arts and recreation through CAS exists. This study explores perceptions of people with disabilities on their participation in leisure, arts and recreation through Australian CAS."
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"Mary Hutchison (2005) Making the Journey: Arts & Disability in Australia. Sydney: Arts Access Australia." Reads, in part "A collection of inspiring examples of how to include people with disabilities in the arts, as participants, creators and organisers"
- Kate Larsen
- Kate Larson
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"Janice Rieger and Megan Strickfaden(2019) “Dis/ordered assemblages of disability in museums.” In The Routledge Handbook of Disability Art, Culture, and Media, edited by Bree Hadley and Donna McDonald, 48–61. London & New York: Routledge." "Museums are spaces of power and care. They are institutions that present assemblages (Deleuze & Guattari 2002), which are reconstructions and representations of history and societal values, and thus are partial realities that curate human existence. These assemblages cannot ever represent the totality of human existence because it is never possible to do so, and yet these assemblages are embedded with power because choices are made about what ought or ought not be represented within museums (Ott 2013; Bennet 2017). The nature of partial realities is that, at their centre, these are still representations that tell stories of what one would imagine to be the most significant events related to a place (nation, city), with a particular focus on a societal event or issue (war, art, sports, nature, human rights, etc.) and peoples (e.g. immigrants, migrants, First Nations or Indigenous peoples, etc.). Persons attending museums rely on the expertise of historians, curators, archivists, conservators, and exhibition designers to present materials within the museum that focus upon and represent societal values. Most museum visitors are not aware of the power that museums hold, although more and more museum visitors push against narratives which they do not feel to be adequate representations of the places, events, issues, and peoples of society (Hooper-Greenhill 1992, 2000; Anderson 2004; Janes 2009, 2010). Where there is power, there is also care. Historians, curators, archivists, conservators, and exhibition designers take great care in how they assemble materials within museums."